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EU Joint Action on Rare Cancers (JARC)

The framework for EU stakeholders and policy makers to work together, set the agenda at national level and help provide diagnostics, healthcare and support to all our citizens who suffer from rare cancer.

The Joint Action on Rare Cancers is a multistakeholders collaboration between 18 Member States and European Commission, coordinated by the Fondazione IRCCS Istituto Nazionale dei Tumori of Milan. There are 34 partners involved in the JARC including Ministries of  Health/Cancer Control Programmes representatives (Cyprus, Czech Republic, France, Ireland, Italy, Malta, Poland and Spain), universities, public health health institutions, population-based cancer registries, oncological onstitutes, patients associations (ECPC, EURORDIS, CCI-Europe) and other societies/organisations (including the Organisation of European Cancer Institutes - OECI and European Society for Pediatric Oncology - SIOPE).