List of the JARC Deliverables

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WP1

Deliverable n 25 Title: Lay version of the final reportDeliverable n 25 Title: Lay version of the final reportDeliverable n 25 Title: Lay version of the final report

WP4

D4.2 List of differences and commonalities between rare cancers registration and rare diseases registrationD4.2 List of differences and commonalities between rare cancers registration and rare diseases registration

D4.4 Recommendations for the standardized estimation of rare cancers indicators at the European and country levelD4.4 Recommendations for the standardized estimation of rare cancers indicators at the European and country level

Deliverable n 25 Title: Lay version of the final reportDeliverable n 25 Title: Lay version of the final report

WP5

D5.1 List of expert centres and networks on rare cancers in Europe.D5.1 List of expert centres and networks on rare cancers in Europe.

D5.2 A framework of systems-based quality standards applicable to all networks and centres for rare cancers adding to ERN requirements.D5.2 A framework of systems-based quality standards applicable to all networks and centres for rare cancers adding to ERN requirements.

D5.3 A proposal for quality assurance processes specific to rare cancers and consistent with ERN requirements focusing on improving quality of care, based on peer review and patient involvementD5.3 A proposal for quality assurance processes specific to rare cancers and consistent with ERN requirements focusing on improving quality of care, based on peer review and patient involvement

- file word of the standard- file word of the standard

WP6

D6.2 Report on the assessment of the quality of existing clinical practice guidelines (for each family of rare cancers)D6.2 Report on the assessment of the quality of existing clinical practice guidelines (for each family of rare cancers)

D6.3 Recommendations on optimal implementation of clinical practice guidelines on rare cancersD6.3 Recommendations on optimal implementation of clinical practice guidelines on rare cancers

D6.4 Recommendations on how to integrate clinical practice guidelines into existing healthcare networks, with special reference to ERNsD6.4 Recommendations on how to integrate clinical practice guidelines into existing healthcare networks, with special reference to ERNs

WP7

D7.2 Recommendations on requirements for long-term surveillance of rare cancer patients (for each family of rare cancers)D7.2 Recommendations on requirements for long-term surveillance of rare cancer patients (for each family of rare cancers)

D7.3 Proposals to improve collaborative international clinical trials in the EU, particularly inter-group clinical trialsD7.3 Proposals to improve collaborative international clinical trials in the EU, particularly inter-group clinical trials

D7.4 Roadmap on precision medicine in rare cancer care within ERNsD7.4 Roadmap on precision medicine in rare cancer care within ERNs

WP8

D8.1 Map of available continuous medical education resources on the 12 families of rare cancers and recommendations on their integration with ERNsD8.1 Map of available continuous medical education resources on the 12 families of rare cancers and recommendations on their integration with ERNs

D8.2 Report summarizing the status of the development of UEMS-EU harmonized educational principles and recommended training materials for rare cancersD8.2 Report summarizing the status of the development of UEMS-EU harmonized educational principles and recommended training materials for rare cancers

D8.3 Report on development of educational tools and learning programmes for the rare cancer patient communitiesD8.3 Report on development of educational tools and learning programmes for the rare cancer patient communities

WP9

D9.1 Report summarising the results of the survey on accessibility of standard treatment and recommendations to Member States and Europe to overcome bottlenecksD9.1 Report summarising the results of the survey on accessibility of standard treatment and recommendations to Member States and Europe to overcome bottlenecks

D9.2 Report summarizing recommendations to facilitate referral of children to trial centers offering innovative medicinesD9.2 Report summarizing recommendations to facilitate referral of children to trial centers offering innovative medicines

D9.3 List of existing preclinical paediatric cancer models and skilled researchD9.3 List of existing preclinical paediatric cancer models and skilled research

D9.4Report summarising proposals to address extremely rare cancers in young patientsD9.4Report summarising proposals to address extremely rare cancers in young patients

D9.5GuGuidelines and recommendations on models of healthcare to assure adequate follow-up of children surviving cancer, transition to adult medicine, and the use o...D9.5GuGuidelines and recommendations on models of healthcare to assure adequate follow-up of children surviving cancer, transition to adult medicine, and the use o...

WP10

D10.1 Recommendations on policy measures on rare cancers for national plans and strategies on cancers and rare diseasesD10.1 Recommendations on policy measures on rare cancers for national plans and strategies on cancers and rare diseases

D10.2 Report on policy and organizational issues affecting the development of ERNsD10.2 Report on policy and organizational issues affecting the development of ERNs

D10.4 Report on consensus/recommendations on the key criteria used for the organisation, governance and harmonization of rare cancer care policies at national and the EU levels

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